Young Ostomates

Anyone can be affected by stoma surgery, regardless of age. We’re able to provide support, information and reassurance to young people and parents who need someone to talk to.

Our Junior Ostomy Support Helpline (JOSH) provides support for parents and carers of young people living with a stoma and other bowel and bladder dysfunctions.

If you’d like to speak to our team of volunteer parents and receive confidential, unbiased and practical advice on raising a child with a stoma please call our helpline on 0800 328 4257.  We’re able to pair callers with a parent whose experiences best match their own.

Other support

Sam has a Stoma

Our “Sam has a Stoma” book helps young children become familiar with stoma surgery. Designed as a story/colouring book, it provides the child, as well as their siblings, with information in preparation for surgery, recovery from the operation and return to full activity. To receive a copy in the post contact us

Additionally, Dansac booklets entitled ‘What’s on your tummy, Emil?’ and ‘Teen with a Stoma’ are available upon request.

Breakaway Foundation

The Breakaway Foundation is a UK-wide charity offering support to children with bladder and/or bowel diversions/dysfunction and their families. Since 2006, Breakaway has helped around 300 families, taking them out of isolation and helping them to realise that they are not on their journey alone.

The Breakaway Foundation is now able to support children from birth to 18, meaning that parents will no longer feel alone in those very difficult early years. Visit their website for more information.

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