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Ashley’s #superstoma

06 October, 2017


My name is Ashley, I  was diagnosed with Crohn’s at the age of 18. I was 14 stone and I tried lots of different medications that did not do much to help my condition, so was put on term steroids that left me with osteoporosis. Sadly as the years went on I could not eat or drink much without affecting my Crohn’s disease, I was always tired and had such terrible painful cramps constantly and was losing weight rapidly.

Sadly at the age of 23 on 29th of June 2012 I died 4 times. I arrested at home and a further 3 times, eventually I was put in a medically induced coma for 2 weeks to rest my bowel with 19 pipes and a tracheostomy to help me breathe.

I had to have speech therapy to learn how to swallow and speak again and physio to teach me to walk again.  I had my illeostomy on the 31st of October 2012  and I went home on 13th of November

I went back to work 2nd of January 2013 and in June I did a 10k run then in September 2014 I did a half marathon.  I followed this in June 2015 with a full marathon and in May 2016 I walked from London to Brighton, 62 miles.

Next week on the 12 of October 2017  I’m of to Marrakech to do my biggest challenge so far since my operation. I’m doing 2 marathons in 2 days across the Sahara dessert

5 years on I’m no longer in pain I can eat and drink anything I want and have such a better health and life than I ever had. I’m proud of my stoma and everything it’s allowed me to achieve and always go topless on the beach or when swimming to raise awareness of the disease

I also work in my local hospital on the bowel ward, helping people who have all ready had their operation or facing their operation, to show them you can lead a normal life and to answer the questions or worries they have.

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